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Table 2 Discrete choice experiment characteristics

From: Preferences of cancer survivors for follow-up care: a systematic review of discrete choice experiments

Study

Attributes Selection Process

N alternatives

N attributes

Attributes and levels

Categories of attributes

Blocks

N tasks/patient

Design and profile generation

Estimation method

Preference Heterogeneity (Yes/No)

Kimman et al. 2010 [27]

Literature review, local policy initiatives

and expert opinion

2

5 (2-4levels)

1) Attendance at educational group programme: Yes, No

2) Frequency of visits: Every 3 months, Every 4 months, Every 6 months, Every 12 months

3) Waiting time in minutes:5,30,60,90

4) Contact mode: Face-to-face, Telephone

5) Healthcare provider: Medical specialist, Breast care nurse/nurse practitioner, General practitioner, Breast care nurse and medical specialist

a, b, d, e, g

2

16

Fractional factorial design(main effects); orthogonal (NLOGIT

3.0 software package)

Mixed logit model

Yes

Bessen et al. 2014 [28]

Literature review, expert consultation

2

5 (3 levels)

1) Clinician: Breast Physician, General Practitioner, Breast Cancer Nurse

2) Frequency: every 6, 9 or 12 months

3) Location: Hospital Clinic, General Practice, Local Breast Cancer Follow-up Clinic

4) Method: Face-to-face, Telephone, Alternate between face-to-face

and telephone

5) Drop-in clinics: Treatment side effects, Psychosocial support,

Secondary prevention

a, b, c, d, g

3

6

Fractional factorial design(main effects)

Mixed logit model

Yes

Damery et al. 2014 [8]

Literature review, clinical guidelines

2

4 (3 levels)

1) Length of follow-up: 5 years,10 years,life long

2) Frequency of follow-up: Once every 3 months, Once every 6 months, Once every 12 months

3) Preferred clinical investigations: Preferred clinical investigations, Clinical examination and X-ray, Clinical examination and intensive investigations

4) Healthcare provider: General practitioner, Specialist hospital nurse, Specialist hospital doctor

a, b, g, m

NA

9

Fractional factorial design; orthogonal

Best–worst scaling analysis; Conditional multinomial logistic regression

NO

Murchie et al. 2016 [29]

Literature review, semi-structured

qualitative interviews

2

8 (2–4 levels)

1) Health care provider: Consult, Registrar/trainee doctor, General practitioner, Specialist nurse

2) Continuity of care: Yes, NO

3) Contact mode and place: Face-to-face at hospital, Face-to-face at general practice, Telephone, Videoconferencing/ web cam/ Skype

4) Duration of appointments:5 min,10 min,20 min,30 min

5) Frequency of appointments:3 monthly,6 monthly,9 monthly,12 monthly

6) Length of follow-up:1 year,2 years,5 years,10 years

7) Counselling: No counselling, Individual counselling, Group counselling, Family counselling

8) Additional services: No additional services, Personalized information pack about cancer, treatment and late effects, Advice on complementary medicine, Dietary advice

a, b, c, d, f, g, k, m

32 choice sets in 2 blocks

16

Fractional factorial design; orthogonal

Binary random-effects logit model

Yes

Wong et al. 2016 [32]

Literature review, semi-structured qualitative interviews

2

6 (3 levels)

Expertise of health care professionals (HCPs): Medical specialist in a cancer center, Medical specialist in a general hospital setting, Nurse practitioner or general practitioner with support/advice from a medical specialist-phone, email, or video conference, such as telemedicine;

Familiarity of doctors with patients’ medical history: The doctor has access to your medical notes and knows you well, The doctor has access to your medical notes but does not know you, The doctor has no access to your medical notes and does not know you;

Waiting time: 1 week, 2 weeks, 3 weeks;

Accompaniment by family/friends: Family/Friends can accompany you to the appointments and stay with you overnight if required, Family/Friends can accompany you to the appointments but are unable to stay with you overnight if required, Family/Friends are unable to accompany you to the appointments;

Travel time: 30 min, 1–2 h, 2–3 h;

Out-of-pocket costs: $100, $300, $500

a, c, e, h, i, j, k

128 choice sets into 16 blocks

8

Fractional factorial design; D-efficiency

Mixed logit model

Yes

Van et al. 2021 [30]

Literature review, interviews with dermatologists

3

6 (2–4 levels)

Standard post-treatment visit performed: Not by same person as treatment provider, By the same person as treatment provider

2) In addition to oral information, extra information will be provided by: E-health, Personalized Letter, General hand-out, General website

3) The additional follow-up visit(s) will be planned:1 year after treatment,6 and 12 months after treatment,1 and 2 years after treatment

4) The additional follow-up visit(s) will be conducted by: Nurse practitioner, General practitioner, Dermatologist

5) The duration of the additional follow-up visit(s) will be:5 min,10 min,15 min

6) Part of skin to be checked during the additional follow-up visits: Face, upper body and treated area, Full body

a, b, f, k, g

2

12

Fractional factorial design; D-efficiency (software Ngene)

Latent Class Analysis (LCA); Multinomial

logit model

Yes

Li et al. 2022 [10]

Literature review, semi-structured qualitative interviews

2 (opt-out)

6 (2–3 levels)

Thoroughness of follow-up contents: Very thorough, General thorough

Provider: Specialist doctor, Primary care physician, Specialist nurse

Cost(Â¥):100, 300, 500

Method: Face-to-face, Telephone or WeChat, Alternate between face to-face and telephone/WeChat

Continuity: Yes, NO

Supplementary services: Treatment of complications, Psychosocial support, Health behavior suggestions

a, d, g, h, k, l

36 choice sets in 4 blocks

9

Fractional factorial design; D-efficiency (software Ngene)

Mixed logit model

Yes

Geng et al. 2024 [31]

Literature review, semi-structured qualitative interviews

2

5 (2–4 levels)

Follow-up providers: Specialist, Primary healthcare practitioner who is linked with your oncologist and is provided with your treatment information;

Continuity of care: Seeing the same healthcare provider every time you attend follow-up, Seeing whoever is available;

Personalized follow-up care plan: Personalized, General;

Communication outside clinic visits (remote contact): No remote follow-up and no counseling provided, Patient-initiated counseling during working hours, Regular calls, Regular calls + counseling;

Additional self-management support: No additional support provided, Medicine instructions, Psychological support, Lifestyle advices

a, d, g, k

16 choice sets in 2 blocks

8

Fractional factorial design; D-efficiency

Mixed logit model; Latent Class Analysis (LCA)

Yes

Senanayake et al. 2024 [6]

Literature review, focus groups interviews, expert consultation, quantitative structured prioritization exercise

2

5(2–3 levels)

Care team providing cancer follow-up care: Medical specialists and breast cancer nurse, Medical specialists, breast cancer nurse and General Practitioner;

Allied health (e.g. exercise and dietetics) and supportive care: 5 allied health and 10 psychology, 10 allied health plus 10 psychology, 15 allied health plus 10 psychology;

Survivorship care plan: No survivorship care plan, Survivorship care plan is developed and shared with the health care team, Survivorship care plan is developed and shared with the health care team and the patient;

Travel to follow-up appointment/s: No travel (telehealth), Travel up to 50 km for every follow-up appointment, Travel for more than 50 km for every follow appointment;

Out-of-pocket costs to the patient per appointment: $0, $100, $200

a, g, h, i

20 choice sets in 2 blocks

10

Fractional factorial design; D-efficiency (software Ngene)

Latent Class Analysis (LCA)

Yes

  1. Services Offered including: Survivorship care plan (detailed document outlining all care arrangements), Allied health and supportive care, Counselling, Clinical investigations, Extra information will be provided by (E-health, Personalised Letter, General hand-out, General website); Educational group programme, Personalised information pack about cancer, treatment and late effects, Advice on complementary medicine, Dietary advice, Supplementary services, Additional self-management support
  2. NR Not Reported, NA Not applicable, HCP Health care professional, LCA Latent Class Analysis
  3. a Healthcare Provider, b Frequency of Visits, c Location of Care, d Contact Mode, e Waiting Time, f Duration of Appointments, g Services Offered, h Costs, i Travel Times, j Social support, k Familiarity of healthcare provider with patients’ medical history/Continuity of care l Thoroughness of follow-up contents, m Length of follow-up