Table 3 General themes from Interviews

Definition of transition

Define transition mainly as a time when they have to take on more responsibility. It is associated with growing up and the accompanying duties such as working and earning money.

See transition as a change of organizational form and type of care. It is emphasized that it is also about young adults learning to manage their health independently.

See transition as a change in the form of care and organizational structure. It is seen as a formal change from pediatric oncology to adult medicine, which is necessary because the billing system requires it.

The “right time”

Mostly are not yet feeling ready for the transition and would prefer to decide for themselves when the time is right, often with a tendency to delay this.

Are often of the opinion that their children are not yet ready and are worried about the transition. They want to ensure that their children are well prepared and have the necessary skills to act independently.

Consider the 18th birthday to be an appropriate time for the transition, as this coincides with other aspects of growing up, such as organising oneself and taking on responsibility.

Changes in healthcare through the transition

See the transition as a phase with more duties and responsibilities, as well as a challenge because of need to get used to new doctors.

Have concerns about the quality of care in adult medicine and their children's ability to take on the new responsibilities.

See the transition mainly as a formal change in care and organisation, but also recognise that more responsibility is transferred to the patient.

Responsibility for the organisation of care

Perceive taking on responsibility as a major challenge and would often prefer to postpone it.

Emphasise the importance of gradually transferring responsibility so that their children feel safe and can develop confidence in their own abilities.

See it as an important step for young adults to learn to manage their own healthcare. They see the transition as part of the process of preparing their children for adult life.