Table 2 Themes of questionnaires
Theme of questionnaire | Name of questionnaire (no. of items) [Reference] |
|---|---|
Decision making preferences | |
Preferences in decision-making | Ask 3 Questions (3 items) [78] |
Cancer patients’ attitudes towards their involvement in decision making | Attitude rating scale (26 items) [60] |
Patient preferences for decision making involvement of medication | Control preference scale [3], adapted version (CPS) (3 items in addition to CPS) [66] |
Women’s preferred role in the breast surgery decision | Control preference scale [3], adapted version (CPS) (1 item in addition to CPS) [69] |
Degree of control an individual desired in the decision-making process | Preference for control in decision making (1 item) [68] |
Patient perceptions of autonomy-supportive communication from their surgeons and oncologists | No name of instrument provided by authors (2 items) [81] |
Information preferences | |
Information needs among cancer patients | Cancer Patients Information Needs (CaPIN) (23 items) [83] |
Priority information needs of women newly diagnosed with breast cancer | No name of instrument provided by authors (9 items) [79] |
Decision making preferences and information preferences | |
Patients' preferences for two dimensions of autonomy: decision making and information seeking | Autonomy Preference Index (API) (23 items) [34] |
Patients' preferences for two dimensions of autonomy: decision making and information seeking | Autonomy Preference Index; German version (API) (14 items) [87] |
Patients' preferences for two dimensions of autonomy: decision making and information seeking for use in mental health care | Clinical Decision Making Style Scale (CDMS) (21 items) [85] |
Preferences for health information and participation in health decision-making | Health Information Wants Questionnaire (HIW) (80 items) [90] |
Preferences for different treatment approaches: Decision making preferences; preferences for information, and behavioral involvement in medical care | Health Opinion Survey (HOS) (16 items) [76] |
Patients’ preferences for information needs and involvement in treatment decisions | Health Opinion Survey (HOS) (16 items), Information Seeking Questionnaire (ISQ) (18 items), Preference for Participation in Treatment Decisions Questionnaire (5 items) [89] |
Degree to which patients prefer to become informed about and to participate in their medical care | Information Styles Questionnaire (15 items) [62] |
Patient preferences for involvement in treatment decision making and desire for information | Problem Solving Decision-Making Scale (PSDM) (18 items) [75] |
Information and decision making preferences of patients with prostate cancer on active surveillance | No name of instrument provided by authors (7 items relevant to this review) [63] |
Health care decision making preferences: information exchange, deliberation, and selection of treatment choice | No name of instrument provided by authors (4 items relevant to this review) [65] |
Patients’ preferences for illness information and treatment decision making | No name of instrument provided by authors (30 items) [73] |
Public preferences for participation | No name of instrument provided by authors (3 items) [48] |
Patients’ information and decision-making needs as a prerequisite for the development of patient decision aids for anxiety disorders | No name of instrument provided by authors (30 items) [77] |
Patient preferences for information and involvement in decision making as a clinical tool | No name of instrument provided by authors (8 items) [82] |
Patients’ information preference about their disease and its therapy and preferred involvement in treatment decisions | No name of instrument provided by authors (4 items) [88] |
Preferences for patient centeredness, communication styles, or aspects of provider-patient relationships | |
Communication preferences of chronically ill patients | Communication preferences of patients with chronic illness (KOPRA questionnaire) (32 items) [64] |
Patient-centeredness of physicians and patients with the two dimensions sharing and caring | Patient–Practitioner Orientation Scale (PPOS) (18 items) [24] |
Patient-centeredness of physicians and patients with the two dimensions sharing and caring | Patient-Provider Orientation Scale; adapted German version (PPOS-D12) (12 items) [74] |
Patient-centeredness of physicians and patients with the two dimensions sharing and caring | Patient-Practitioner-Orientation-Scale; adapted German version (PPOS-D6) (6 items) [84] |
Relation between trust and shared decision making, and preferred terminology | No name of instrument provided by authors (2 items) [80] |
Information preferences, decision making preferences and/or communication preferences | |
Patients’ informational needs, decision-making preferences, and communication preferences | Communication Preferences for content & format (CPCF) (44 items; 26 relevant to this review) [61] |
Clinical care and service in general, and additional themes | |
Patient experiences or patient needs of chronic cancer: clinical service, self-care and self-management, needs for independent living, work, finances and benefits, psychological experiences, support pathways | Chronic Cancer Experiences Questionnaire (CCEQ) (75 items) [67] |
Engagement in decision making in cancer care: Diagnostic acceptance (emotional process), empowerment, involvement (relational processes), information-seeking, planning (cognitive processes) | Decisional Engagement Scale (DES-10) (10 items) & short version (DES-3) (3 items) [71] |
Patients' experience and priorities in domains through which they routinely experience their healthcare providers: patient-physician relationships, patients’ personal responsibility for health, diagnostic tests, patient preferences regarding medications, healthcare costs | What matters to you survey (5 items) [70] |
Patient preferences for engagement in healthcare used by nurses: information gathering, self-advocacy, informed decision-making, family involvement, active participation, resources | Patient Preferences for Engagement Tool (PPET) (27 items) [72] |
Preferences of patients with asthma for attributes or characteristics associated with treatment for their asthma: Extent to active listening, Extent to treatment relief, Chance of experiencing side effects, Extent to continuity of doctors during treatment, Extent to patient centeredness, Travel costs | No name of instrument provided by authors (17 items) [86] |