Table 3 Illustrative quotes on facilitators and barriers to shared access from patients and care partners
From: Users’ perspectives on a demonstration to increase shared access to older adults’ patient portals
Patients | Care partners | |
|---|---|---|
Facilitators - alignment of shared access with both patients’ and care partners’ needs | “It gives him [care partner] the same information that I have concerning my health and his.” (patient, clinic B) “My husband and adult children wanted to understand health issues I have been going through.” (patient, clinic C) “It has been a very good experience for my husband and I to share medical information about each other and be able to communicate with each other’s medical providers.” (patient, clinic E) | “It has been a great tool in navigating my husband’s health care as well as communication between care providers.” (care partner, clinic B) “I am signed up as a [shared access] proxy for [name redacted] with dementia. It is helpful to chat with her care team privately sometimes.” (care partner, clinic D) “My father has Alzheimer’s and my mother does not like technology, so I am the main user for him. I love the easy access and the ability to review notes and tests and then explain them to my mother.” (care partner, clinic D) |
Barriers– impeding shared access use | “My husband and I signed up for each other pretty recently. Today we decided to stop it. It was confusing and unnecessary for us to see everything on each other’s chart. Once I thought I was on my husband’s chart when indeed I had signed into mine.” (patient, clinic C) “My wife is the only person I would offer access, and I just share my login credentials with her.” (patient, clinic D) “I was not sure I wanted my kids to see everything. I wanted that control.” (patient, clinic U). | “Patient does not have a computer or smart phone, has dementia; seemed easier to just create them an account and then I can log in with their credentials. I have had to do that as their financial power of attorney for other sites, so it is what I am used to.” (care partner, clinic B) “I have my own accounts and it is easier to use her account for her [information].” (care partner, clinic C) “Easier to use husband’s login credentials and no additional account to keep track of.” (care partner, clinic E) |