Table 1 Main topics from the interview guides for patients and informal caregivers
From: What do patients and informal caregivers value in IBD care? A narrative inquiry
Daily life & IBD | • IBD disease course • Impact of IBD on daily life • Management of IBD |
Received care | • Type of care received by IBD patient • Experiences with IBD care • Involvement of informal caregivers in IBD care |
High quality IBD care | • Elements of high quality IBD care • Experiences with high quality and poor IBD care • Changes and improvements in IBD care • Experiences and expectations related to eHealth and telemonitoring • Practical aspects of IBD care |